Welcome To
MUSCULAR DYSTROPHY
REHABILITATION
SAMITI
About Us
MUSCULAR DYSTROPHY REHABILITATION SAMITI – This is such an organization/committee which has been formed by the affected families themselves who are fighting with this type of disease, in which you have included Presidents and State Coordinators of many states of the country who are working for Muscular Dystrophy in their respective states, whose aim is to bring together all the affected families of the country and improve the life quality of these innocent children through different types of therapies etc. so that they can live their normal life to some extent and the public should be made as aware as possible about this disease.
MUSCULAR DYSTROPHY – ये एक जेनेटिक Progressive Disease है जो की Rare Disease है, ये Disease रोगी को उसकी माँ के गर्भ से ही मिलती हैं इसमें स्त्री वाहक (Carrier) होती है , वैसे तो ये Disease कई प्रकार की होती हैं, लेकिन Duchenne Muscular Dystrophy इनमे काफी कॉमन मिलती है, इस बीमारी मे बच्चा जन्म से दिखने में बिल्कुल नॉर्मल बच्चो की तरह दिखता है और लगभग 3/4 साल की उम्र तक नॉर्मल बच्चो की तरह से चलता फिरता है, उसके बाद ये बीमारी अपना असर दिखाना शुरू करती हैं , बच्चो मे काफी तरह के बदलाव आने लगते है धीरे धीरे उसके शरीर के अंग टेढ़े मेढे होने लगते है, 9/10 साल (अप्रोक्स) की आयु तक बच्चा चलना फिरना बिल्कुल बंद कर देता है और बच्चा व्हील चेयर / बेड पर आ जाता है तथा 15-25 की आयु में बच्चो की मृत्यु हो जाती है,
MUSCULAR DYSTROPHY SYMPTOMS
Trouble walking
Trouble walking, often a consequence of neurological or musculoskeletal disorders, hinders mobility & independence. It can result from conditions like muscular dystrophy, stroke, or arthritis, requiring assistive devices or physical therapy for management.
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Muscle weakness
Muscle weakness is a condition marked by reduced strength and functionality in muscles, making everyday tasks challenging. It can stem from injuries, neurological disorders, or systemic illnesses, impacting mobility and overall quality of life.
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Frequent falls
Frequent falls can be a significant concern for individuals with balance or muscle strength issues, often associated with conditions like muscular dystrophy or Parkinson’s disease. Prevention through physical therapy and environmental modifications is crucial.
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Cardiac issues
Cardiac issues are common in some types of muscular dystrophy, particularly Duchenne muscular dystrophy (DMD), due to the progressive weakening of the heart muscle. Regular cardiac monitoring and specialized care are essential for management.
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